Managing Disease: Important Considerations, Conversations, Decisions

A rare kidney disease diagnosis can leave you with more questions than answers.

In this episode of The Rare Kidney Source Podcast, nephrologist Dr. Sayna Norouzi joins patients Lindsey and Sloane to share practical advice for navigating the first weeks after a C3G or primary IC-MPGN diagnosis. From organizing biopsy reports and medical records to understanding test results, preparing for appointments, and weighing treatment options, they break down the steps that can help you feel more informed and confident.

Whether you're newly diagnosed or supporting someone who is, this conversation offers honest guidance, helpful takeaways, and reassurance that every question is worth asking.

For more information, visit rarekidneyandyou.com

The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.

The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.