Rare Kidney Source

Living with a rare kidney disease means paying extra attention to what you put in your body. Everyday decisions around food, medication, and exercise can become so difficult that patients feel overwhelmed. In this episode, C3GN patient Lilly joins us to share her journey managing her disease, from tracking apps to the…

On the latest episode of The Rare Kidney Source Podcast, patient Sloane and her mom, Lindsey, share how life changed after diagnosis and the everyday routines that helped them find a new normal. From medications and meals to school, appointments, and navigating the emotional ups and downs, they offer an honest look at…

A rare kidney disease diagnosis can leave you with more questions than answers. In this episode of The Rare Kidney Source Podcast, nephrologist Dr. Sayna Norouzi joins patients Lindsey and Sloane to share practical advice for navigating the first weeks after a C3G or primary IC-MPGN diagnosis. From organizing biopsy…

On this episode of the Rare Kidney Source podcast, Lilly, a person living with C3G, and Dr. Joshua Thurman highlight why early diagnosis, ongoing lab monitoring, and open communication between a patient and their care team are so important. For more information, visit https://rarekidneyandyou.com/ The Rare Kidney…

Your labs aren't just numbers, they're trying to tell you something. On this episode of the Rare Kidney Source podcast, Dr. Anthony Chang and Anne, a C3G patient, break down what matters, why trends matter more than a single result, and how to speak up when something doesn't add up. For more information, visit…

From unexplained childhood symptoms to a life-changing diagnosis, this episode traces one patient's long road to understanding C3G, a rare complement-mediated kidney disease. Michelle Farley shares how years of dismissal, misdiagnosis, and crisis ultimately led to answers, a transplant, and a new era of targeted…