A Rare Occurrence

Doctor after doctor recommended a different treatment option to Marlene Portnoy's husband, Steve, after he was diagnosed with a desmoid tumor. Research on the subject seemed out of reach until Marlene met Dr. Mrinal Gounder. Dr. Gounder is an oncologist treating sarcoma patients, and his understanding of desmoid tumors provided the answers they needed.

In this episode of Your Stories, Marlene and Dr. Gounder recount how a rare disease brought them together and how their partnership is still improving treatment for patients like Steve.