013 - Kyle & Sean's #1 Advice

In this episode, Kyle & Sean talk about how building community has helped them and how it could help YOU.

“No man is an island…,” as John Donne reminds us.

Growing up with a rare disease is, almost by definition, lonely. Faced with physical limitations that most of our neighbors don’t have to face many times makes us feel odd. With ataxia, we go through issues with balance that make us seem awkward and clumsy; but all people with disabilities face some kind of uncommon limitation, whether its using our arms or leg, trouble hearing, speaking, or seeing, facing mental issues or any other symptom of a disability. The unfortunate result is that many of us with disabilities feel odd.

However, the truth is that people dealing with disabilities are not alone. It’s important for everyone - disabled or not - to be a part of a community, but it’s even more important for people who feel isolated to find support and understanding from those facing similar challenges as them.