Chicken Soup for the Flow: stories of extreme bleeds, medical gaslighting, and HTC's (part 1)
Episode Description
Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan!
Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recuring lack of testing for rare conditions.
Program Notes:
Episode Links:
-
Bloodstream Media: https://www.bloodstreammedia.com/
-
HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/
-
On Burnout / Emily Nagoski: https://www.ted.com/talks/emily_nagoski_and_amelia_nagoski_the_cure_for_burnout_hint_it_isn_t_self_care
How's Your Flow?
-
We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories
Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on
Check out Believe Limited's Other Work:
Bombardier Blood: bombardierblood.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
The Science Fair: thesciencefair.org
On the Shoulders of Giants: https://www.ontheshouldersfilm.com/
Proudly Supported by
Patrons of Health Podcast Library
Supporting Shows
