Chicken Soup for the Flow: stories of extreme bleeds, medical gaslighting, and HTC's (part 1)
Apple Podcasts
SpotifyEpisode Description
Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan!
Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recuring lack of testing for rare conditions.
Program Notes:
Episode Links:
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Bloodstream Media: https://www.bloodstreammedia.com/
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HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/
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On Burnout / Emily Nagoski: https://www.ted.com/talks/emily_nagoski_and_amelia_nagoski_the_cure_for_burnout_hint_it_isn_t_self_care
How's Your Flow?
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We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories
Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on
Check out Believe Limited's Other Work:
Bombardier Blood: bombardierblood.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
The Science Fair: thesciencefair.org
On the Shoulders of Giants: https://www.ontheshouldersfilm.com/
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