EP250: How to Make Patient-Collected Data Actionable for Shared Decision Making, With Vicky Tiase From NewYork-Presbyterian Hospital

In this episode, Stacey Richter talks with Vicky Tiase, MSN, RN, director of research science at NewYork-Presbyterian Hospital, about how to make patient-collected data actionable for shared decision making.

WHAT YOU'LL LEARN

✅ Why patients, families, and caregivers are increasingly generating their own health data outside the clinical setting

✅ The barriers keeping clinicians from bringing patient-collected data into their workflows

✅ The debate between provider-prescribed apps and patient-chosen apps—and why a trusted framework can bridge both

✅ How the new CMS rule requiring providers to share data back to patients fits into this picture

✅ Why data alone isn't enough—it has to become information, and then knowledge

WHY THIS MATTERS

Vicky Tiase makes the case that the real barrier to using patient-generated data isn't patient willingness—it's a lack of feedback loops, unclear decision needs, and app saturation. She walks through how NewYork-Presbyterian is working to translate raw data into information and then into knowledge clinicians can actually act on, while navigating the tension between letting patients choose their own apps and the practical need for standardization on the back end.

MENTIONED IN THIS EPISODE

🔗 EP157, with Dr. Ethan Basch

=== LINKS ===

🔗 Show Notes with all mentioned links: Episode Page

🔗 Healthcare Industry Acronyms and Terms

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00:00 Introduction.

03:04 What patients are looking for from their provider when they collect their own data.

03:29 The two categories of patients gathering data.

05:27 Patients looking to participate.

06:34 Encouraging a continuation of data collection while learning to use that data.

07:00 The importance of needing a feedback loop in patient data collection.

08:22 Why clinicians are confused about patient data and patient data barriers.

09:59 "It comes down to the data."

11:00 The pieces of patient data that clinicians need to explore.

11:38 Understanding decision needs and understanding which data are going to be most valuable to clinicians.

12:26 Contending with the saturation of health data collection apps.

13:53 Empowering patients to use the app of their choosing, while vetting these apps.

15:13 What the ideal patient data collection looks like.

16:54 "Seamless data sharing."

18:04 Are different patient data solutions necessary for different cohorts of care?

18:55 EP157 with Dr. Ethan Basch.

20:27 "It's not just data that we're looking at, but … data are translated into information, and from information … into knowledge."

25:01 Vicky's advice: Understand your organizational policies.

28:52 The best solutions for patients collecting and wanting to share their data from a variety of apps.

30:01 The need to think about consumer-directed exchange.

30:49 What Vicky's looking forward to at the NODE.Health conference event.