Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy
Jan 2, 2025
31:30
Episode Description
Links & Resources:
Follow Their Journey on Social Media
- Facebook: Paxtons Pioneers
- Instagram: Paxtons_Pioneers
KCAL News Story
- Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage
