A Mother's Crusade to Find a Cure for Her Son - Amber Freed, Founder and CEO, SLC6A1 Connect
Episode Description
A Mother’s Crusade to Find a Cure for Her Son - Amber Freed
Amber Freed is the mother of twins, Maxwell and Riley. At a year old, Maxwell was diagnosed with a disease too rare to have a formal name, referred to as SLC6A1. When Amber was told nothing could be done, she decided to fight. She left her career that day and shifted her focus towards a treatment. She's a leader in the rare disease community and is the founder of SLC6A1 Connect.
EPISODE HIGHLIGHTS
Give us a little background on the beginning of your journey as an advocate?
Tell us about your kids coming into the world and becoming a mom.
What started you on a mission to get answers about Maxwell's development?
What were the results of the genetic test?
Calling a scientist in Denmark was the beginning of your crusade. What has happened since then?
How much money have you raised so far?
What advice do you have for the listeners?
LINKS AND RESOURCES MENTIONED
SLC6A1 Connect https://slc6a1connect.org/
Donate https://slc6a1connect.org/donate-here/
Contact Amber afreed@SLC6A1Connect.org
TUNE INTO THE ONCE UPON A GENE PODCAST
CONNECT WITH EFFIE PARKS
https://twitter.com/OnceUponAGene
https://www.instagram.com/onceuponagene.podcast/?hl=en
Proudly Supported by
Patrons of Health Podcast Library
Supporting Shows
