The Rise of the Patient Informaticist with Grace Vinton

What if the most valuable healthcare expert in the room is the patient?

Host Rosa Hart sits down with Grace Vinton, PR pro, patient advocate, and host of HITea With Grace, to talk about what happens when patients stop being treated as passive recipients of care and start being recognized as informaticists in their own right.

Grace shares the near-death experience that sparked her advocacy, the story behind coining the term "patient informaticist," and why paying patients and caregivers for their time and expertise is overdue. She also lays out her billion-dollar vision for a healthcare consumer community investment fund built around real stories, real people, and real priorities.

In this episode:

• Coining the term "patient informaticist"
• How technology made patients "CEOs of their care experience"
• Fair market pay for patient and caregiver expertise
• The billion-dollar question: investing in a healthcare consumer community

Timestamps:

0:00 – Introduction & welcome to guest Grace

2:03 – Grace's near-death health journey and how it sparked her passion for patient advocacy

4:51 – Coining the term "patient informaticist"

7:27 – Early resistance to patient expertise, and how technology made patients "CEOs of their care experience"

9:37 – Patient engagement vs. patient informatics: participation vs. co-creation

12:29 – Real examples of patient insight changing products, research & protocols (pharma chief patient officers, #PatientsUseAI, genomics research)

17:20 – Fair market calculators and paying patients/caregivers for their time and expertise

19:22 – The four parts of a person (self, relationships, systems, science) often ignored in healthcare research

21:05 – Social determinants of health & financial barriers in stroke research

24:36 – Advice for bedside nurses wanting a seat at the health IT table

26:17 – Spotlight on Jean Ross and Primary Record

28:04 – The long game of networking and relationship-building

31:26 – The billion-dollar question: how Grace would invest $1B in healthcare

34:40 – Where to find Grace (HITea With Grace podcast, HIT Like a Girl podcast, LinkedIn, Instagram)

36:48 – Closing & call to action

Nurse Rosa's INsights is a nurse-led healthcare leadership and innovation podcast.

Follow Grace: HITea With Grace | HIT Like a Girl

Follow Rosa: nurserosaspeaks.com | @NurseRosaSpeaks

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