CF Parenting Stories: 3 Voices, 3 Perspectives (Part 2)

In Part 2 of "CF Parenting Stories: 3 Voices, 3 Perspectives", Ahmet Uluer, DO, MPH, Andrea Gavin Becker, and Lauren Harvey sit down with returning guests Abi, Mike, and Morgan to discuss how parenting when you have cystic fibrosis evolves across stages of life. They talk about managing decline, building support, and the hard reality of not knowing how many healthy years you’ll get. There’s reflection on partnerships, mental load, and the complex role guilt plays—both in parenting and being parented.

But this conversation isn’t just about what’s hard. It’s also about presence, perspective, and the joy that is parenting—even if things feel uncertain.

From board game meltdowns to grief spirals, this episode captures the perspective, pragmatism, and constant recalibration of parenting when you have CF.

Find our guests' complete bios on Instagram:

Morgan Barett: @morganbarrett__

Abi Halstead: @abihalstead

Mike Shapiro: @mmjlshapiro

Resources:

NACFC 2025 presentation by Dr. Ahmet Uluer and Dr. Karen von Berg: “A Breath of Fresh Age: Redefining Growing Older With Cystic Fibrosis”

https://www.youtube.com/watch?v=OHg8Pr0J8_o

The content presented in this podcast is for informational and educational purposes only, and is not intended as medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.