CF Parenting Stories: 3 Voices, 3 Perspectives (Part 1)

As more people with cystic fibrosis have the chance to become parents (because for the first time, many are living long enough to consider it), Ahmet Uluer, DO, MPH, Lauren Harvey, and Andrea Gavin Becker are asking what that looks like.

In "CF Parenting Stories: 3 Voices, 3 Perspectives" (Part 1), we talk with three parents with CF—Abi, Mike, and Morgan—each navigating a different version of family life with CF in the mix.

They explore exhaustion, decision fatigue, burnout, and shifting roles. They also share how they explain CF to their kids—what they say, what they leave out, and how those conversations evolve over time. There’s transparency about what’s working, what they’ve learned through trial and error, how parenting changes when your health isn’t a given, and how modulators have changed the picture for some, but not for others.

From travel-day chaos to a Scooby-Doo impression you won’t want to miss, this episode brings humor, honesty, and a deep sense of lived experience—whether you’re parenting, considering it, or just curious what it takes.

Find our guests' complete bios on Instagram:

Morgan Barett: @morganbarrett__

Abi Halstead: @abihalstead

Mike Shapiro: @mmjlshapiro

Resources:

NACFC 2025 presentation by Dr. Ahmet Uluer and Dr. Karen von Berg: “A Breath of Fresh Age: Redefining Growing Older With Cystic Fibrosis”

https://www.youtube.com/watch?v=OHg8Pr0J8_o

The content presented in this podcast is for informational and educational purposes only, and is not intended as medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.