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with @DrPelvicPainDO: Is the Internet Making Endometriosis Care Better—or Worse?

I Did My Own Research · 36 min

Episode Description

What happens when patients become experts in their own endometriosis—and the internet becomes their second opinion?

Dr. Fran sits down with gynecologic surgeon Dr. Jill Ingenito (@DrPelvicPainDO) to unpack the complicated world of endometriosis, chronic pelvic pain, and the information patients find online. They discuss why specialized training in complex benign gynecology matters, where general OB-GYN care has limitations, and how patients can tell when it’s time to seek a surgeon with more specialized expertise.

They also dig into the good—and messy—parts of online endometriosis communities: doctor bashing, patient advocacy, Facebook groups, echo chambers, and the ways patients are pushing medicine to address gaps that have existed for years.

Dr. Ingenito shares practical advice for vetting an endometriosis surgeon, including questions about surgical volume, complications, what happens when no endometriosis is found, and—perhaps most importantly—what the plan is after surgery.

Plus, they tackle the online villainization of birth control, emerging approaches to diagnosing endometriosis without surgery, GLP-1 medications and endometriosis, nerve-sparing surgery, and why physicians acknowledging their own limitations can ultimately lead to better patient care.

Dr. Ingenito's social media: @DrPelvicPainDO

Dr. Fran's social media: @PagingDrFran

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