Ep. 104 - Empowering Love: How a Mother Embraces the Unique Journey of Raising a Child with Dwarfism

In this episode Dr. Sarah is joined by Dr. Alex Neimczura who shares her honest and emotional journey as a Mother who during pregnancy discovered her son will be born with Dwarfism. We will discuss the definition, characteristics, challenges, advocating for your child and shattering the stigma! 

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Bio: Dr. Alex Niemczura has a PhD in biomedical science (neuroscience) from Northeast Ohio Medical University and Kent State University. In her job as a Senior Medical Writer, she develops medical education materials and scientific publications for major pharmaceutical companies. Her medical writing experience is in the areas of rare diseases, lung cancer, neuropsychiatry, and ophthalmology. 

Alex is the mother of two wonderful children — a 3-year-old daughter, Stella, and a 1.5-year-old son, Hudson. Hudson has a rare form of dwarfism, called hypochondroplasia. When he was diagnosed, Alex discovered there was not a lot of information about hypochondroplasia available for parents; she realized she was in a position to change that. She now uses her medical knowledge and communications experience to teach others about dwarfism and share her experience as a mother of a child with hypochondroplasia, in both her professional and personal life.