Yes, Women Have Hemophilia: Knowledge Gaps, Diagnostic Delays & the Fight for Equity
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SpotifyEpisode Description
This episode of the Global Hemophilia Report explores the long-overdue conversation about women with hemophilia. Experts discuss the challenges women face in getting diagnosed, the persistent gaps in clinical research and care, and the impact of outdated language and systemic bias. The panel highlights the need for better data, more inclusive clinical trials, and a shift in medical culture to ensure women with hemophilia are recognized and prioritized.
Guests:
Andra James, MD, MPH
Michelle Sholzberg MDCM, FRCPC, MSc.
Dawn Rotellini
Len Valentino, MD
Robert Sidonio, Jr., MD
Senior Advisor: Donna DiMichele, MD
Hosted by: Patrick James Lynch
Written by: Kay Vermeil
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Show Notes:
Presenting Sponsor:
Presented by Sanofi
Join Shellye as she shares her inspiring journey as a woman living with hemophilia. After years of unanswered questions, her diagnosis highlights the critical role of health literacy in bridging care gaps. Through advocacy, Shellye raises awareness and empowers underserved communities. Watch her story and see how health literacy can break barriers and transform lives. Click here to watch her story: Sanofi – See Hemophilia Through My Eyes: Women & Girls
For too long, women and girls who bleed have been dismissed. Left out of the narrative. Ignored by the system. But not anymore.
In our new film, "Dismissed," meet Isabelle—a 15-year-old with hemophilia who's using her voice to uplift the unheard. Alongside her are four powerful stories of women challenging what's "normal" and demanding recognition, care, and justice.
This is more than a film. It's a movement.
📽️ Watch and share the trailer now. Learn more at http://dismissedfilm.com/
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