Global Advocacy at the Organizational Level
Episode Description
On this episode of the Global Hemophilia Report, we speak with guests who are each pioneering hemophilia advocacy in their respective regions. The discussion highlights the pivotal role of data and patient storytelling in driving systemic change and policy advancements. The episode emphasizes how global collaboration and technological innovations are paving the way for more equitable hemophilia care worldwide.
Guests:
Harshal Kale, World Federation of Hemophilia
Matthew Delaney, National Bleeding Disorders Foundation
Megan Adediran, Hemophilia of Nigeria
Senior Advisor: Donna DiMichele, MD
Hosted & Written by: Patrick James Lynch
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Show Notes:
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