Bone and Joint Health: Monitoring and Detection Strategies
Episode Description
Even with the introduction of prophylaxis, the goal of achieving perfect bone and joint health for patients with hemophilia through normalizing homeostasis remains elusive. In this episode, we cover the current monitoring and detection strategies and explore the investigational work that's aimed at enhancing existing tools, validating suspected tools, and discovering entirely new ones.
Episode Advisors:
Dr. Marilyn Manco-Johnson
Dr. Kathelijn Fischer
Contributors:
Dr. Annette Von Drygalski
Dr. Tyler W. Buckner
Dr. Amy Dunn
Dr. Suchitra S Acharya
Dr. Andrea Doria
Dr. Beth Warren
Tom Russomano
Senior Advisor:
Dr. Donna DiMichele
Links to learn more:
- Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study
- Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia-specific instruments
- Vascular remodeling underlies rebleeding in hemophilic arthropathy
- Quantitative measurements of haemophilic joint tissues by point‐of‐care musculoskeletal ultrasound: Associations with clinical and functional joint outcome parameters
- How Do PROMIS Scores Correspond to Common Physical Abilities?
- Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS
Show Notes:
Presenting Sponsor: Sanofi
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