Episode 29: A father on the legacy of his son's ultra-rare disease

Bertrand Might was born with a rare disease that had never before been diagnosed, an odyssey that took four grueling years. He was 12 years old when he died last year — almost a decade older than physicians predicted he would live. This week on the First Opinion Podcast, Bertrand’s father, computer scientist Matthew Might, talks about how he used his coding skills to try to extend his son’s life, and how daring research projects could save lives across the country and around the world if the Biden administration’s proposed Advanced Research Projects Agency for Health (ARPA-H) comes to life.