€200m and 20 years: What EU health data projects built, and what EHDS needs next (Henrique Martins)
Episode Description
Nearly €200m, twenty years of EU health data projects. Henrique Martins on what they built and what EHDS needs next. Before the European Health Data Space became law, the EU had already funded two decades of cross-border interoperability work: epSOS, EXPAND, Trillium Bridge, JAseHN, eHAction and more. Henrique Martins has worked on most of them. In this conversation he explains how those projects became MyHealth@EU, why the European EHR exchange format matters for every hospital and IT vendor, what digital health authorities and health data access bodies will do from 2027, and how far patient control of health data can realistically go. He also argues that Europe is not behind on cross-border exchange, that slow national progress is ultimately a political choice made by voters, and that 2027 will show whether the EHDS implementing acts can actually be applied. GUEST Henrique Martins — Associate Professor, ISCTE – University Institute of Lisbon; coordinator, i2X (Intelligent Implementations of the European EHR Exchange Format); former President of SPMS, Portugal's national digital health agency; former Member States co-chair, EU eHealth Network Host: Tjaša Zajc WHAT THE CONVERSATION COVERS
- What nearly €200m in EU interoperability funding bought over twenty years
- How epSOS, EXPAND and OpenNCP became MyHealth@EU
- Cross-border ePrescription and patient summary: who exchanges data today
- The European EHR exchange format (EEHRxF) and why discharge reports still don't travel
- Transformation layers: wrapping HL7 v2 messages in FHIR
- AI and natural language processing to structure clinical data at the point of care
- Trillium Bridge: EU–US patient data exchange, and why it couldn't be funded today
- Xt-EHR and how joint actions shape the EHDS implementing acts
- Digital health authorities vs health data access bodies: why one versus many
- Patient rights under EHDS: access, download, correction and upload
- Health data activism and patient health literacy
- The xShare Yellow Button, MyHealth@MyHands and the EU Digital Identity Wallet
- i2X: 35 pilots, 12 member states and 3 million citizens — and everyone else
- Is Europe slow? Cross-border exchange compared with North America
- The EHDS test for 2027: implementing acts and demonstration sites
CHAPTERS
03:00 Fifteen years of European interoperability projects
03:36 €200m over twenty years: what EU funding built
06:38 FHIR, implementation guides and the European exchange format
10:10 From drop-down menus to AI: structuring health data
10:48 epSOS, eHAction and the projects that shaped EU digital health
14:02 Trillium Bridge: when the EU and US exchanged health data
15:58 Xt-EHR and why joint actions shape the implementing acts
18:58 Digital health authorities and health data access bodies explained
23:13 Patients and EHDS: access, correction and health data activism
29:04 Is Europe too slow? 3 million in pilots, 400 million waiting
39:08 The best case for 2027: implementing acts that work
Recent FODH episodes on interoperability and EHDS:
Herko Coomans on interoperability [ • Interoperability Isn't Failing — It's Unde... ]
• Nils Hellrung on openEHR and EHDS [ • Just Connecting systems isn't interoperabi... ] • Karlien Hollanders, The Agentic Patient [ • "I stopped letting AI read my daughter's m... ]
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