#32- Exploring new approaches to service delivery: video tools and consumer experiences

This episode explores genetic service delivery and various ways genetic counseling can be incorporated.

 

Segment 1: How to Reduce Time to Genetic Testing: A Video-Based Approach in the Inherited Cardiac Conditions Service

 

Guest Bios

Dr Lisa Bryson is a Clinical Genetics Registrar at the Centre for Genomic Medicine in Glasgow, with a background in paediatrics. She is due to complete her clinical genetics training shortly and will take up a Consultant Clinical Geneticist post in New Zealand. She has been involved in a number of research projects alongside her clinical training, including the GenVid pilot study and as an Associate Principal Investigator for the GENROC study. Her research interests include rare disease and the clinical application of genomic medicine.

 

Dr Ruth McGowan is a Consultant in Clinical Genetics (West of Scotland, Centre for Genomic Medicine), Honorary Clinical Associate Professor (University of Glasgow) and member of the Developmental Endocrinology Research Group (DERG), affiliated to University of Glasgow. Her key interests are Inherited Cardiac Conditions, Rare Conditions and Disorders of Sex Development. She is an active member of the Network for Inherited Cardiac Conditions Scotland (NICCS) and was previously Co-chair of the Scottish Rare Disease Implementation Board.  Dr Ruth McGowan is the Lead Clinical Geneticist for the West of Scotland Inherited Cardiac Conditions service. She has been Chief or Principal Investigator of numerous research projects including the MRC/CSO funded ‘Scottish Genomes Partnership’, the ‘Scottish Participation in the 100K Genomes Knowledgebase’ and the ‘Genetic Investigation of Rare Disorders’ study.

 

In this segment we discuss:

- Use of a video-based genetic counseling pathway in the UK NHS for patients at risk of an inherited cardiac conditions

- The impact of GenVid pathway on barriers to genetic services

- Integration of genetic counseling and digital tools

 

Segment 2: Consumer Experiences and Perceptions of Genetic Counseling in Provider-Mediated Genetic Testing

 

Guest Bios:

Madison Kilbride, PhD, is an Assistant Professor of Philosophy at the University of Utah. She received her doctorate from Princeton University and was a fellow in the Postdoctoral Training Program in the Ethical, Legal and Social Implications (ELSI) of Genetics and Genomics at the University of Pennsylvania. Her scholarship examines ethical issues surrounding genetic testing, particularly those raised by consumer genetic testing.

 

Katie Lauro, MS, LCGC is a general genetics and cancer genetic counselor at Genome Medical, a telehealth genetic counseling service. She received her BS in Human Biology from Michigan State University and her MS in Genetic Counseling from the University of Utah Graduate Program in Genetic Counseling (UUGPGC). Katie is grateful for the opportunity to share and discuss her research during her time in the UUGPGC, which was published in the Journal of Genetic Counseling in July 2026. 

 

In this segment we discuss:

- Provider-mediated genetic testing and its distinction from traditional DTC testing.

- The ENLITE study and its focus on consumer experiences with genetic testing

- Consumer perceptions of genetic counseling and barriers to access

- Future directions for integrating genetic counseling into broader healthcare settings

 

Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.

 

Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”. 

 

For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others. 

 

Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com. 

 

DNA Dialogues’ team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today’s Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Vanaja Chavva.