#SYNGAPconf22 was a hit, join us in 2023… #S10e86

PRE-REGISTER FOR NEXT YEAR

https://twitter.com/cureSYNGAP1/status/1608462863819067397

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Buy this book on Amazon or on JR’s website - #MoreOfEverthing by JR

https://janiereade.com/
https://www.amazon.com/More-Everything-extreme-special-emotional-ebook/dp/B0BQ2C7HNL 

 

JACKIE KANCIR STORY

https://www.facebook.com/cureSYNGAP1/posts/pfbid0gTTnF77VdbTirweTyKqKxHzDkNz66jUxxnvwMzjUxzwzFU1Q1U4HYrDywFMoBeAkl

https://twitter.com/cureSYNGAP1/status/1608216895240671232?s=20&t=INvuB36y5oJM-bL_RKtscg

https://www.linkedin.com/feed/update/urn:li:activity:7013986280099250177

 

CIITIZEN DATA BY CHOP

https://twitter.com/JillianLMcKee/status/1600202742269501442  

 

SIGN UP FOR CIITIZEN

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SCIENCE DAY AGENDA
https://twitter.com/sandysmith317/status/1598322472037801984 

 

FAMILY DAY AGENDA

8:30 AM SYNGAP1 CAREGIVERS: REALITY, RESILIENCE AND RESOURCES - Becky 10:45 AM REGISTRIES - Invitae, Simons, Rare-X w/Q&A

12:15 PM GETTING CLINICAL TRIAL READY - Kathie Bishop, Acadia

1:15 PM PRAXIS

1:40 PM TAKING ON BEHAVIORS - Jackie Kancir, SYNGAP1 Mom & Advocate

2:30 PM MORE OF EVERYTHING BOOK LAUNCH - Janie Reade, SYNGAP1 Mom & Author

3:20 PM SRF LATIN AMERICA - FONDO DE INVESTIGATION SYNGAP - Vicky

3:45 PM SRF YEAR IN REVIEW - Rebecca, Peter, Pavel

4:30 PM LOOKING TO THE FUTURE - Mike

6:30 PM COMMUNITY DINNER

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 86 of #Syngap10 - December 29,  2022 

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology