Splash & #SYNGAPlove in 3 days, DSC & BCH Grants, more ICD attention! - Episode 15 of #Syngap10 - July 18th, 2021

#SPLASH4SYNGAP is on MONDAY.

• 3 days until June 21st!
• Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap 
• Use hashtag #SYNGAPlove & #Splash4SYNGAP

DSC & BCH - It’s go time!  Let’s raise some funds. Read the blogs

• Syngap.fund/biomarker = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
• Syngap.fund/BCH = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development

ICD-10

• EveryLife case study! https://everylifefoundation.org/icd-code-roadmap/#toggle-id-13
• Dravet Business Cards.   Copying is great!  Copy us.
• ONE YEAR SOONER: Reminder why all this matters https://www.syngapresearchfund.org/post/oneyearsooner

ORCA: Via CB we are in.  Stay tuned here.  SYNGAP1 is one of the validation teams

• Rett Press Release https://www.prweb.com/releases/rett_syndrome_research_trust_announces_development_o[…]on_ability_of_individuals_with_rett_syndrome/prweb18012275.htm
• DUKE FDA GRANT https://populationhealth.duke.edu/news/orca-measure-expands-more-neurodevelopmental-diseases

GRANDPARENTS group is going strong

• Tell your parents about https://syngap.fund/grand = https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1 
• Also had the c.333del (6!) and regular wednesday bit.ly/SRFHH at 5 PM Pacific.