Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6

All US Families, please take the time to fill out the ProMMiS Survey. It takes 5 minutes. It's super important. Even if you haven't been there, we need your feedback.

English: https://curesyngap1.org/SurveyProMMiS  

Spanish: https://curesyngap1.org/encuestaProMMiS

 

Our funding priorities for 2026 are Genetics, Behaviors & Isoforms. https://www.linkedin.com/posts/graglia_syngap1-curesyngap1-grants-activity-7421952845693788160-EHeK 

 

Pubmed 2026 is at 6!

https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date

 

Coolest paper on Pubmed… GC rich areas were missed, so not only do we need to push for testing, but also REtesting.

https://pubmed.ncbi.nlm.nih.gov/41577710/

 

Bravo to CURE SYNGAP1 Poland (please send me a shirt) & thank you to CAMP4

Event: https://www.linkedin.com/posts/curesyngap1_it-was-a-day-to-remembera-perfect-combination-activity-7422379922578587648-wNBP

 

Don’t move to or from US/EU/LatAm etc.  This question keeps coming.  Please stay where you are and advocate like crazy.  Set up CURE SYNGAP1 [Your location]

 

Biorepository needs more samples.  Check out the list and map here https://docs.google.com/presentation/d/1IjaHILXj7AlBDlbTJgvYrkBS_0bnI8VCnTIiPXJ7JGM/edit?usp=sharing and contribute blood.  The data and research we do with these samples is invaluable.

 

Annual update to Champions of Hope! https://curesyngap1.org/champions-of-hope/ 

 

May 28, San Francisco, CA: cureSYNGAP1.org/SF26 

 

SOCIAL MATTERS

4,661 LinkedIn.  https://www.linkedin.com/company/curesyngap1/ 

1,520 YouTube.  https://www.youtube.com/@CureSYNGAP1   

11.2k Twitter https://twitter.com/cureSYNGAP1 

45k Insta https://www.instagram.com/curesyngap1/ 

 

$CAMP stock is at $3.83 on 27 Jan. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ

 

Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/

Episode 197 of #Syngap10 #CureSYNGAP1 #Podcast