Adults, New parents, ABA, Misense and Money - Episode 9 of #Syngap10 - May 7th, 2021

In this episode, Mike reflected on a conversations with and questions from SYNGAP parents who have responded to previous episodes of SYNGAP10.  As usual, it was packed.

• Thanks to DISORDER for listing SYNGAP10 as one of the best Rare Disease podcasts.  We are honored.  https://www.rarediseasefilmfestival.com/rarediseasepodcasts
• Reflections on conversation with parents, especially the parents of Adult SynGAPians.
• We had a great webinar this week with Lori Unumb about ABA, Autism and Advocacy, you can view it on our webinars page https://www.syngapresearchfund.org/families/resources/webinars 
• Next week we will have a great webinar with Prof. Haas of UBC about missense mutations.  Don't miss it. https://www.syngapresearchfund.org/webinars/functional-assessment-of-missense-variants-of-syngap1-kurt-haas
• Ciitizen continues to grow, sign up at https://Ciitizen.com/SYNGAP1 
• Mike answered a great question about cost and access.  Explaining why we are hopeful that payers will support our therapies.