Episode 67

#67- What are the ethical considerations of genetic testing in children?

Episode Description

Bioethicist Curtis discusses the complexities of genetic testing in children, including ethical considerations, parental rights, and privacy issues. He emphasizes the importance of shared decision-making and informed consent in pediatric genetics.

Key words: genetic testing, children, bioethics, parental rights, informed consent, privacy, genetic counseling, ethical considerations

Key Takeaways:

Genetic testing should occur when there is agreement between clinical team and family
Parents have broad rights to make decisions for their children but ethical limits exist
Involving children in their healthcare decisions is crucial as they mature
Genetic privacy is limited, and sharing results has implications
Shared decision-making aligns testing with family values

Guest bio:

Dr. Coughlin is a Professor of Pediatrics and serves as a clinical ethicist at the Children’s Hospital Colorado. His research focuses on rare diseases and on applying empirical and conceptual methods at the intersection of genetics, policy, and bioethics. He is an editor of the upcoming textbook Ethics and Genetic Counseling Practice, and his recent publications have focused on equitable access to genomic information and supporting individual decision-making

Resources related to today’s topic:

Findageneticcounselor.org to search for a genetic counselor near you

Give your feedback and help shape All Access DNA! Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7

Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com

Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com

Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.

The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Aryanah Estinvil.