The Road to Diagnosis

In this debut episode of This is PNH, hosts Amy and Keith are joined by patient Jessi Hackney and Dr. Daniel Winokur to break down Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare blood disease where the immune system mistakenly attacks its own red blood cells. Using a hotel analogy, they explore the science behind hemolysis, the frustrating road to diagnosis, and why rare diseases are so often missed. Jessi shares her personal journey from unexplained symptoms to a life-changing diagnosis, while Dr. Winokur explains the science behind the diagnosis and the outlook for patients diagnosed today.

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Transparency Statement: The This is PNH Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals.

The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.