How is Europe preparing for secondary use of data in healthcare through EHDS?

Fidelia Cascini is Digital Healh expert engaged by the Italian Ministry of Health on European and national initiative. She recently wrote a book on secondary use of data in healthcare, read it here: Secondary Use of Electronic Health Data Public Health Perspectives, Use Cases and Challenges https://link.springer.com/book/10.100... This conversation covers the categorization of electronic health data, the importance of distinguishing different data types, and the potential applications and challenges in digital health. We also explore healthcare systems' digitalization, patient data privacy, the European Health Data Space (EHDS), and future public health perspectives. Learn about patient-generated data, clinical trials, and the significant role of digital health advancements in shaping the future of healthcare.

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Show notes:

01:08 Diving into Different Categories of Health Data

01:35 Discussion on Secondary Use of Data in Europe

02:16 Call for Listener Feedback

03:07 Starting the Interview with Felia Kini

03:36 Importance of Distinguishing Data Types

04:38 Challenges in Using Different Data Sources

06:38 Real-World vs. Clinical Trial Data

07:19 Patient Preferences and Medication Adherence

09:31 Most Suitable Data for Secondary Purposes

10:32 Patient Generated Health Data

11:53 Discussions Among Health Ministries

13:09 Trustworthiness and Integration of Digital Tools

17:45 Patient Reported Outcomes in EHRs

19:35 European Health Data Space (EHDS)

29:55 Patient Control Over Data

33:47 Barriers to EHDS Success

37:13 Public Health Perspectives and Global Changes

40:14 Conclusion and Future Perspectives

42:20 Closing Remarks and Upcoming Events