Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival
Episode Description
ONCE UPON A GENE - EPISODE 028
Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival
Bo Bigelow is the co-founder of Disorder: The Rare Disease Film Festival. He's joining today to talk about life in quarantine and his beautiful daughter Tess, who inspired him to produce a podcast, Stronger Everyday.
LINKS AND RESOURCES MENTIONED
Disorder: The Rare Disease Film Festival
rarediseasefilmfestival.com/" target="_blank" rel="noopener noreferrer">https://www.rarediseasefilmfestival.com/
Episode 15: Films and Fatherhood with Daniel DeFabio
https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy
Stronger Everyday Podcast
portlandrootsmedia.com/strongerpodcast" target="_blank" rel="noopener noreferrer">http://www.portlandrootsmedia.com/strongerpodcast
Discovering new diseases with the internet: How to find a matching patient
might.net/articles/rare-disease-internet-matchmaking/" target="_blank" rel="noopener noreferrer">http://matt.might.net/articles/rare-disease-internet-matchmaking/
Foundation for USP7 Related Diseases
usp7.org/" target="_blank" rel="noopener noreferrer">https://www.usp7.org/
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Apple Podcasts
apple.com/us/podcast/once-upon-a-gene/id1485249347" target="_blank" rel="noopener noreferrer">https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347
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stitcher.com/podcast/once-upon-a-gene" target="_blank" rel="noopener noreferrer">https://www.stitcher.com/podcast/once-upon-a-gene
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