We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201
Episode Description
Friday, March 6, 2026 - Week 10
WHAT DO WE NEED $ FOR?
I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants. All of this is what we need to fund.
SPRINT FOR SYNGAP1
Sprint for SYNGAP is coming fast– 49 DAYS. Make a difference. Raise some money.
Get on the map! Text sprint26 to 71777
https://curesyngap1.org/calendar/sprint4syngap-2026/
INAUGURAL SF NIGHT OF IMPACT
Also to raise funds, please join us in SF on May 28th. 83 DAYS. Thanks to the organizational team Justin, Zoe, Ed, Jessica, etc.
NHS Matter
I talked in episode 198 #S10e198 about the importance of natural history studies. Check out this paper on Zuvenersen from Dravet to understand the long-term impact these studies could have.
https://www.nejm.org/doi/full/10.1056/NEJMoa2506295 Join ProMMiS and Citizen Health.
SHOUTOUTS
Rosie Davilla on Univision
curesyngap1.org/rosie2026 - https://www.univision.com/local/dallas-kuvn/syngap1-el-diagnostico-que-cambio-la-vida-de-rosie-en-texas-video
#RareDiseaseDay Talks
Emily Barnes @ Quiver; Paulina and Brian Sheehan @ Third Rock; Mike @ SparkNS; John Hill & Allison CNBC Cures.
Beata’s double header SYNGAP1 Stories. Part 1.
https://curesyngap1.org/podcasts/syngap1-stories/beata-tarasiuk/
DSCIII
In addition to Colorado Children’s & Stanford we are now in a study at Boston Children’s, Rush and U Alabama aka UAB. Attending kick off for this at the end of the month.
DATES TO TRACK
Scramble for Syngap - 5th annual on October 3 in S. Carolina in 211 DAYS cureSYNGAP1.org/Scramble26
Conference in Denver CO! 271 DAYS. Sponsorship options in our #Prospectus for industry are available here https://curesyngap1.org/prospectus Science Day - cureSYNGAP1.org/SD2025Videos Family Day - cureSYNGAP1.org/FD2025Videos
See our entire library of webinars & videos on YouTube youtube.com/cureSYNGAP1
BIOSAMPLES & EEGs!
Biorepository needs more samples. Check out the list and map here https://combinedbrain.org/roadshow/ and contribute both blood & EEGs. The data and research we do with these samples is invaluable. Let us know if you are going, email our CSO@curesyngap1.org
PUBMED
Pubmed 2026 is at 12, just like last week but am I seeing some amazing manuscripts! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date
Two particularly cool papers:
HDAC Inhibitors https://pubmed.ncbi.nlm.nih.gov/41777621/
A positive missense causing cognitive resiliencehttps://pubmed.ncbi.nlm.nih.gov/41777621/
SOCIAL MATTERS
4,732 LinkedIn. https://www.linkedin.com/company/curesyngap1
1,535 YouTube. https://www.youtube.com/@CureSYNGAP1
11.2k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1
$CAMP stock is at $4.59 on 5 Mar. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ
Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10/
Episode 201 of #Syngap10 #CureSYNGAP1 #Podcast
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