Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208

Tuesday, May 19, 2026 - Week 21

 

Personal Update via Syngap Stories:

Page: cureSYNGAP1.org/stories41 

Post: https://www.linkedin.com/posts/syngap1stories-syngap1-curesyngap1-share-7462125026276777984-OVBr

 

#ThisIsOursToLose - Three steps to engaging friends with CURE SYNGAP1.

 

1. Share CURE SYNGAP1 Video - Burden, Hope & Progress - 1.1k views in 11 days.

cureSYNGAP1.org/Burden https://www.linkedin.com/posts/syngap1-curesyngap1-raredisease-share-7458298251893448706-jfWF

 

1. Send IMPACT REPORT - Tool for family, newly diagnosed & Fundraising.

cureSYNGAP1.org/Impact or cureSYNGAP1.org/Impact25

 

1. Ask to Donate

curesyngap1.org/donate/

 

CAMP4

Joining us at the Night of Impact (with Stoke, Acadia, BioMarin, Gondola & others) and…

https://www.biospace.com/press-releases/camp4-therapeutics-to-present-new-preclinical-data-demonstrating-cmp-002-improves-seizure-threshold-and-severity-in-a-model-of-syngap1-related-disorder

 

INAUGURAL SF NIGHT OF IMPACT, CA – 9 days

Join us this is our only Gala for 2026!

cureSYNGAP1.org/SF26

 

5TH SCRAMBLE FOR SYNGAP, SC – 137 days

Classic case of a small event becoming an institution!

cureSYNGAP1.org/Scramble26

 

CURE SYNGAP1 CONFERENCE - 198 days.

cureSYNGAP1.org/Pre26

 

USA: use your ICD-10, F78.A1: https://onlinelibrary.wiley.com/doi/10.1002/epi.70142

 

PUBMED

Pubmed 2026 is at 31. +10 vs the week. (61 last year was +9) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date

 

SOCIAL MATTERS

4,964 LinkedIn.  https://www.linkedin.com/company/curesyngap1

1.58k YouTube.  https://www.youtube.com/@CureSYNGAP1

11.1k Twitter https://twitter.com/cureSYNGAP1

45k Insta https://www.instagram.com/curesyngap1

 

$CAMP closed at $4.56 yesterday.

https://www.google.com/finance/beta/quote/CAMP:NASDAQ

 

Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10

Episode 208 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy