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Episode 18

”Seizures, Communication, Behavior, Sleep, Other” Is that right? - Episode 18 of #Syngap10 - July 9th, 2021

Jul 10, 2021
10:41
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Episode Description

#SYNGAP10 - Ep. 18 - "Seizures, Communication, Behavior, Sleep, Other" Is that right?

  • https://Syngap.Fund/CTR - $26k and growing.
  • Birthday Fundraisers, $25 per $250, we will find and thank you!
  • https://Syngap.Fund/blog - Make sure to read the latest on variants
  • Events: Webinar & Meetups
    • https://syngap.fund/webinar - Next week, Saturday, July 17th @ 9 Pacific.
    • San Diego Family Meetup - SRF Syngap Meet-Up, July 28th @ 3 pm, Details in SRF NA Group.
    • Beach Haven, NJ Meetup - August 1st  11-5, details in the SRF NY Group. Caren will come! https://Syngap.Fund/caren t-shirts.
  • We are working on a poster for a meeting, stay tuned, we are learning it’s not easy to explain this life… a couple of stories
    • Order of Symptoms
    • 8 weeks from Seizure to Dx in Ireland, wow, 3.5.  Great work Temple St, Dublin.
    • Meds overload.  Always check levels and loop with doctors…

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