#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209
Episode Description
Wednesday, June 10, 2026 - Week 24
#NightOfImpact was 15 Days ago!
Photos: https://jeaniehorton.pixieset.com/curesyngap1nightofimpact2026/
Impact: $800k+, of which $300 was our match.
Industry: Multiple
Academics & Clinicians: Stanford, Berkeley & UCSF. Cross-pollination is always good.
Speakers: Ash, John, Kathryn, Helen Willsey & Me. Only got a video of John, which was a mistake. If you took one, please share. Here is John: https://www.linkedin.com/posts/graglia_still-reflecting-on-our-inaugural-cure-syngap1-ugcPost-7467439971294048256-cUf9/
Dr. Willsey Rocks.
Willsey Press Release https://www.eurekalert.org/news-releases/1130924 (both were at NoI).
A few other points on HRW, as we call her. Simons: https://curesyngap1.org/blog/future-research-for-syngap1-how-helen-willsey-broke-new-ground-frogs-in-hand/
Willsey in Neuron 2021: https://www.cell.com/neuron/pdf/S0896-6273(21)00002-7.pdf (Frogs)
Birtele in Nature Neuroscience 2023: https://www.nature.com/articles/s41593-023-01477-3 (Confirms)
McCluskey in Nature Communications 2025: https://www.nature.com/articles/s41467-025-57342-3 (GI) Kostyanovskaya in BioRxiv 2025: https://pubmed.ncbi.nlm.nih.gov/39677731 (cilium)
5TH SCRAMBLE FOR SYNGAP, SC – 114 days
Classic case of a small event becoming an institution!
CURE SYNGAP1 CONFERENCE - 175 days
USA: use your ICD-10, F78.A1: https://onlinelibrary.wiley.com/doi/10.1002/epi.70142
PUBMED
Pubmed 2026 is at 35. +11 vs the week. (61 last year was +9) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date
SOCIAL MATTERS
5,045 LinkedIn. https://www.linkedin.com/company/curesyngap1
1.58k YouTube. https://www.youtube.com/@CureSYNGAP1
11.1k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1
$CAMP closed at $4.34 today.
https://www.google.com/finance/beta/quote/CAMP:NASDAQ
Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10
Episode 209 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy
Listen On
