Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206
Episode Description
Wednesday, May 6, 2026 - Week 19
Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend. https://www.linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791427486466048-j8SB
WEBINARS!
CURE-ID Webinar tomorrow! Register now. Thu May 7, 2026 1:30pm – 3pm (PDT) cureSYNGAP1.org/cureID
Next week, especially NY families, while you are registering, please make sure to go to this one with Dr. Buxbaum from Mt. Sinai. curesyngap1.org/seaver https://www.linkedin.com/posts/curesyngap1_curesyngap1-syngap1-rarediseaseresearch-activity-7457507565527044096-dDEK
Longitudinal Data Matters - Every six months or more!
Study list!
- CURE SYNGAP1 CONNECT http://curesyngap1.org/connect
- Citizen Health https://www.citizen.health/ai-advocate/syngap1
- Combined Brain
- ProMMiS https://www.linkedin.com/feed/update/urn:li:activity:7450196488300728320 & Rare-X, the same week.
- OR DSC. #S10e
- CURE-ID for Drug responses. Webinar: Thu May 7, 2026 1:30pm – 3pm (PDT) cureSYNGAP1.org/cureID
6th ANNUAL SPRINT FOR SYNGAP1, we raised over $300k! (Gross)
Thank you Tavillas for raising over $170k this will go to the Missense fund. We spent over $¼M on missense last year.
Thank you Emily Barnes for hosting a New England event for families. https://www.linkedin.com/posts/ecarlisle_we-had-an-incredible-sprint-for-syngap-ugcPost-7457845816502845440-nJCd
Thank you to Sara and Sarah for the Virginia event. GREAT WORK. https://www.linkedin.com/posts/sarah-sakly-648544337_syngap1-raredisease-curesyngap1-ugcPost-7456869206341464065-VESz
Thank your Rifton for the donation of the tricycle. Congratulations Matthew! https://www.linkedin.com/posts/curesyngap1_syngap1-curesyngap1-sprint4syngap-activity-7457806850676281344--JR-
Thank you to the Edouard Family! cureSYNGAP1.org/Crafts26
INAUGURAL SF NIGHT OF IMPACT, CA – 22 days
Join us this is our only Gala for 2026!
5TH SCRAMBLE FOR SYNGAP, SC – 150 days
Classic case of a small event becoming an institution!
USA: use your ICD-10, F78.A1: https://onlinelibrary.wiley.com/doi/10.1002/epi.70142
PUBMED
Pubmed 2026 is at 27. +10 vs the week. (61 last year was +9) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date
SOCIAL MATTERS
4,931 LinkedIn. https://www.linkedin.com/company/curesyngap1
1.56k YouTube. https://www.youtube.com/@CureSYNGAP1
11.1k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1
$CAMP closed at $3.97 Friday.
https://www.google.com/finance/beta/quote/CAMP:NASDAQ
Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10
Episode 206 of #Syngap10 #CureSYNGAP1 #Podcast
Listen On
