Getting ready for Global Genes, Cannonball Scramble Gala & the SYNGAP1 Conference — #S10e116

Congrats to… - Allan Blake on his airborne fundraiser for SRF UK - Aaron and Monica Harding on their Military Lifegiver Podcast (start at 7 minutes) - Beacon on their FDA approval on the Sleep Headband Dream 3S - Soiree 8/26 - $300K net raised by Suzanne 

 - Katrien on the ILAE #SYNGAP10 #S10e115 

 

Webinar coming up:

  Behaviour, Cognition and Sensory Processing in People with SYNGAP1

  Register: https://us02web.zoom.us/webinar/register/WN_tXX0ZKcgQqm9heZgf0AfDg

  Sept 28 @ 9am PT/ 5pm GMT

 

  Still a classic: Mike to FDA on SYNGAP1 For ORCA https://www.youtube.com/watch?v=AObE7NhSlmg&t=447s 

 

Events to mention in SYNGAP10

 - Global Genes, DEI - 9/18 - 9/23 - Vicky and Mike

 - 2nd Scientific Conference in Spanish (virtual) 9/23 - Cannonball 10/4-10/6; Brett, Peter, Monica & Reece listen to Stories Episode 12 MH!

 - Scramble 10/7 Julie Miles https://syngap.fund/scramble 

 - Park City Epilepsy Mtg 10/15 - 10/17; Mike, JR

 - Gala 10/21 Nancy Kessler https://syngap.fund/CLG3 

 - Conference 11/30 & 12/1 + Sea World or Disney 12/2

 

Conference - Sign up by Halloween - We need head counts.

 - Registration link: https://Syngap.Fund/Orlando  

 - Hotels: https://Syngap.Fund/2023hotel 

 - Shirts: https://www.bonfire.com/srf-syngap1-conference-2023/ 

Share your time and blood too! - Sign up for ciitizen! - Sign up for CHOP!

 - Volunteer!

Donate to the biorepository in OH or IL: - Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)

- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611 

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 

- https://www.syngapresearchfund.org/syngap10-podcast Apple podcasts: https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917

Episode 116 of #Syngap10 - September 18, 2023

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat