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Episode 8

BREAKING NEWS 🚨re ICD-10 & other goodness around #SSB30 & #sprint4syngap - Episode 8 of #Syngap10 - April 30th, 2021

Apr 30, 2021
10:04
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Episode Description

SYNGAP10 - Episode 8 - BREAKING NEWS This episode is an absolute must.  Don't miss it.

 - Reminder that #SSB30 is happening now, the first pharma sponsored study on #ciitizen.  If you are enrolled in Ciitizen, start doing your seizure tracker today: 🔗 https://Syngap.Fund/ST

 - If you have not yet signed up for Ciitizen, there is still time, it's free: https://www.ciitizen.com/syngap1/ 

 - 🚨 Breaking: We have reason to believe that we will get an ICD-10 code in June, effective 10/1/21.  This is a big deal.  Background link: https://www.syngapresearchfund.org/post/syngap-could-have-an-icd-10-code-f78-a1-as-soon-as-next-year  Referenced link from podcast: https://www.cms.gov/medicare/acute-inpatient-pps/fy-2022-ipps-proposed-rule-home-page

- #Sprint4Syngap raised $122,500+.  Huge thanks to everyone.  Two great videos of the community building that took place are:  Colombia 🇨🇴 https://youtu.be/4jYGJJnbLf8   Boston https://youtu.be/edlfSW1kvKE

- Welcome to 4 new families just diagnosed in the past week.  🤯

- If you want to support SRF, call us, there is some much good work to do!

This is a podcast, sign up via your favorite service or watch previous episodes at: https://www.syngapresearchfund.org/syngap10-podcast 

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